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AIMS

MANAGEMENT

Membership Benefits

DOCUMENTS TO DOWNLOAD

Members ONLY

Click below for links to other items of interest
HGC: 
'Inside Information' 
Click for details
21 May 2009
The Moratorium on the use of Genetic Test Results by Insurers
24 October 2010
HGC Interim recommendations 
1 May 2010
Joint statement with 
ABI, BSHG on Genetic Research Projects
24 April 2010

HGC 'Whose Hands On Your Genes?'
Response of UKFGI to Consultation               

Royal Institution Lecture by Chris Daykin
22 March 2010
Text                       Slides

Comment on the GAIC decision on Huntington's
Commons Science and Technology Committee Report on Genetics & Insurance

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UK FORUM for GENETICS and INSURANCE

AIMS and APPROACH
LIAISON WITH GOVERNMENT

AIMS
wpe485.jpg (1453 bytes)To bring together medical and statistical research on the extra risks to people with conditions to which there is a significant genetic predisposition.

wpe485.jpg (1453 bytes)To consider the value of the results of
genetic tests in the assessment of people’s insurability.

wpe485.jpg (1453 bytes)To encourage further research in these areas, and multi-disciplinary discussion
and exchange of information.

wpe485.jpg (1453 bytes)To consider how best to provide protection against these risks and how these may best be shared between the public and private sectors.

wpe485.jpg (1453 bytes)To consider how best to balance the rights of individuals against the social costs.

wpe485.jpg (1453 bytes)To investigate how our understanding of these issues is likely to evolve in the light of further discoveries.

wpe485.jpg (1453 bytes)To consider how society might best prepare and adjust to such new knowledge.

wpe485.jpg (1453 bytes)To communicate information to members on a regular basis.

wpe485.jpg (1453 bytes)To report our findings and, in so doing, educate the public and opinion-formers on relevant issues.

wpe485.jpg (1453 bytes)Tasks for the future will include identifying and encouraging appropriate research projects and considering ways in which risks may be pooled.
APPROACH

The Forum aims to be inclusive in its membership, drawing strength from the diversity of the organisations and individuals it will bring together who share a common interest in this vital topic. Members will include insurance companies and other businesses; caring professions; charities; organisations concerned with research and research funding; local Government; NHS and NHS trusts; academics; and consumer groups.

LIAISON WITH GOVERNMENT

The Government has established a Genetics and Insurance Committee to validate generic tests. The Forum welcomes this development and will seek to co-operate with the Committee, aiming to complement its work by encouraging research and debate which will help to establish the usefulness (or otherwise) of genetic test results for insurance applications.